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Respite care provides temporary relief for primary caregivers of individuals with disabilities by arranging substitute care. Respite can be provided in the family's home, in a provider's home, or in a facility-based setting such as a group home or specialized respite center. Services range from a few hours of in-home support to overnight or weekend stays. Respite workers may be trained direct support professionals, certified nursing assistants, or — in self-directed waiver programs — trusted friends or extended family members. Respite is one of the most requested and valued HCBS waiver services because caregiver burnout is a leading cause of out-of-home placement. Research consistently shows that access to regular respite reduces caregiver stress, improves family stability, and helps individuals with disabilities remain in their homes.
Respite care is available through nearly every HCBS waiver in every state. Families should request their full respite allocation — many families leave hours unused because they do not know they are entitled. The Compass Quiz identifies respite options in your state.