Community
Share tips, ask questions, and connect with other families.
How we got off the California HCBS wait list in 14 months
After being told it would be 3-5 years, we used a combination of emergency placement requests and our regional center coordinator to escalate. Here is exactly what we did step by step...
Texas ABA insurance appeal — what worked for us
United Healthcare denied our son's ABA therapy twice. On the third appeal, we included a peer-reviewed study and a detailed letter of medical necessity from a BCBA. The key was citing the specific Texas mandate language...
Can anyone explain the difference between guardianship and conservatorship in Colorado?
My daughter turns 18 next year and I'm trying to understand our options. Our attorney mentioned supported decision-making as an alternative but I'm confused about what protections each option provides...
Free AAC evaluation through your school district — know your rights
Many parents don't know this: your school district is required to evaluate your child for AAC as part of the IEP process, at no cost to you. This includes trialing devices. Here's how to request it in writing...
Moving from NY to Florida — what we lost and what we gained
We moved for family reasons and I want to share our experience. New York had amazing services but the cost of living was crushing us. Florida's waiver wait list is brutal (8+ years) but we found workarounds...
ABLE account saved our SSI eligibility — here's how
We almost lost our son's SSI because we were saving money in a regular account. Switching to an ABLE account let us save up to $100k without affecting benefits. The tax advantages are great too...